A hesitant beginning to a happy commitment
2012 began for me with the Lupus Foundation of Minnesota asking me to be an ambassador for their organization. I was initially hesitant for a couple reasons. One was the lengthy flare I had been dealing with from the recent, and very sad, death of my father – I wasn’t sure if I would be able to follow through. The second reason was my ongoing, on-and-off lupus diagnosis – I wasn’t convinced that I would be a very good ...Continue Reading →
It is with the heaviest of hearts that I recently learned of the loss of a young, athletic lady, taken by complications of her disease activity. I really don’t believe there is anything that grabs the attention more of those afflicted with lupus, than the unexpected death of a fellow lupus fighter. My deepest sympathy and heartfelt wishes to the McHale family as they mourn the loss of their 23 year-old daughter, Sasha.
Straight-up, lupus is cruel. It doesn’t distinguish between ...Continue Reading →
Choosing How I Want to Use My Energy
Today I was fortunate enough to come home from work early and take a nap. I work full time and even though my job is protected through FMLA, I can only use so much of that during a month. Some days I don’t feel bad enough to stay home, but I don’t feel good enough to work all day either. Plus I know that pushing myself can sometimes be detrimental and cause a flare.
For me, having lupus is an everyday ...Continue Reading →
The Perfect Gift
Eleanor Roosevelt said it best, “Yesterday is history, tomorrow a mystery, today is the gift, that’s why it’s called the present.”
When living with a life-threatening, chronic illness it is very (repeat VERY) easy to get ahead of yourself, to worry about the unknowns and to fear the future. Perhaps mingling in the knowledge of what lupus can do and has already done in your life, may have accelerated those thoughts for you. For me it has. I feel like ...Continue Reading →
Dr. Emily Gillespie Visits with MinnPost for Lupus Q&A
Dr. Emily Gillespie, University of Minnesota researcher who will present at the Lupus Foundation of Minnesota’s Lupus Conference on December 15, recently sat down with MinnPost contributor Susan Perry to discuss lupus and its complications, current research and even mortality. The Q & A-formatted interview can be viewed on the MinnPost website: Continue Reading →
Introducing Kim, Lupus Ambassador
Hello everyone! I’m Kim, one of the 2012 Lupus Ambassadors for LFM. We may have even met at the Twin Cities, Rochester and Duluth Lupus Walks for Hope, or at the Lupus Night at Target Field this past year.
For those of us living with lupus, 2012 has been an exciting year filled with hope, amazing awareness efforts, breakthroughs in research and increased public donations to find a cure. I’ve seen this on a national level, but quite extensively here in ...Continue Reading →
Introducting Gwen, Lupus Ambassador
My name is Gwen Alexander and I’ve been diagnosed with lupus since 2006. I’m pretty confident I’ve been living with it most of my life but just not knowing. I’m a divorced mother of a 16-year-old dancer, wannabe actress/model/chef/beautician. I’ve been dating the same man for about 10 years and for now I’m working full time and I am currently the Ambassador for the Lupus Foundation of Minnesota (LFM). I’ve spent most of this year raising awareness and monies for ...Continue Reading →
Gaffney is Rewriting the “User’s Manual”
With the completion of the Human Genome Project. Scientists promised the world a sort of “user’s manual” for the human body and commentators predicted the end of disease.Continue Reading →
While those results have not yet arrived, it’s researchers like the Oklahoma Medical Research Foundation’s Patrick Gaffney, M.D., who are trying to get the world there.
If DNA is the “Big Book of You,” with billions of pages ...
A summer of opportunities
This summer was amazing! I can’t even begin to describe how beneficial this summer fellowship was to my future career as a scientist. I learned so many new protocols that I can add to my list, as well as just how a lab works in general. I always thought labs had an impersonal and competitive environment, but this summer I got to see just how collaborative everyone was within and between labs.
I also got to do some amazing things that ...Continue Reading →
The buzz of science
Successful science is not done only from 9 a.m.-5 p.m. Nor does it restrict itself to the working week. Working at the Center for Immunology has thrown me into the pace of science: a well-oiled machine that takes over your existence no matter which day of the week or what time of day.
The greatest excitement while doing my experiments has come as the sun is setting, as the lab quietens down from the hustle and bustle of the daytime. Still, ...Continue Reading →