Posts Tagged 'Lupus'

My “New Normal”

As I’m thinking of ideas to blog about, it occurred to me to talk about some of the topics I find myself discussing with friends and family. Most people have heard of lupus but many don’t really know how life-altering it is. I sure didn’t.
 
When I was diagnosed nearly three years ago, I knew very little about lupus. I knew it’s an autoimmune disease meaning that my body is basically attacking itself. I knew of people who got ...

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Chris Cronick
Chris Cronick
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Introducing 2013 Lupus Ambassador Chris Cronick

My name is Chris Cronick and I’m honored to have been chosen as the 2013 Lupus Ambassador for the Lupus Foundation of Minnesota (LFM). I’m 37 and I was diagnosed with lupus in 2010. Prior to my diagnosis, I was in and out of the hospital for six months. It was a very scary time, not knowing what was wrong. I was tested for everything, but eventually was diagnosed with lupus SLE.

I have found that many times those ...

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Chris Cronick
Chris Cronick
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Local lupus study recruiting participants

SLE is an autoimmune disease capable of causing severe tissue damage in many organs. The cause of SLE is unknown, but recent research has identified infection-fighting proteins called interferons (or IFNs) which are made and released by host cells in response to the presence of pathogens such as viruses, bacteria, parasites or tumor cells. IFNs allow for communication between cells to trigger the protective defenses of the immune system that eradicate pathogens or tumors.

In this ...

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LupusMN.org
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Come hell or high water

“I recommend that you take the medication each day, come hell or high water.”

I sometimes use this cliché’ phrase as I counsel patients suffering with Systemic Lupus Erythematosus (SLE). Clinical research shows that diligence and persistence in use of immune system-modulating drugs is important for optimal disease control for many people with SLE. Some drugs need to be taken day in and day out, for months or years, to be most effective. Repeated clinic visits, blood monitoring requirements, pharmacy charges, ...

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Erik Peterson
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A hesitant beginning to a happy commitment

2012 began for me with the Lupus Foundation of Minnesota asking me to be an ambassador for their organization. I was initially hesitant for a couple reasons. One was the lengthy flare I had been dealing with from the recent, and very sad, death of my father – I wasn’t sure if I would be able to follow through. The second reason was my ongoing, on-and-off lupus diagnosis – I wasn’t convinced that I would be a very good ...

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Kim Zink
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Inflammation

It is with the heaviest of hearts that I recently learned of the loss of a young, athletic lady, taken by complications of her disease activity. I really don’t believe there is anything that grabs the attention more of those afflicted with lupus, than the unexpected death of a fellow lupus fighter. My deepest sympathy and heartfelt wishes to the McHale family as they mourn the loss of their 23 year-old daughter, Sasha.

Straight-up, lupus is cruel. It doesn’t distinguish between ...

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Kim Zink
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Choosing How I Want to Use My Energy

Today I was fortunate enough to come home from work early and take a nap. I work full time and even though my job is protected through FMLA, I can only use so much of that during a month. Some days I don’t feel bad enough to stay home, but I don’t feel good enough to work all day either. Plus I know that pushing myself can sometimes be detrimental and cause a flare.

For me, having lupus is an everyday ...

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Gwenevere Alexander
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The Perfect Gift

Eleanor Roosevelt said it best, “Yesterday is history, tomorrow a mystery, today is the gift, that’s why it’s called the present.”

When living with a life-threatening, chronic illness it is very (repeat VERY) easy to get ahead of yourself, to worry about the unknowns and to fear the future. Perhaps mingling in the knowledge of what lupus can do and has already done in your life, may have accelerated those thoughts for you. For me it has. I feel like ...

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Kim Zink
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Dr. Emily Gillespie Visits with MinnPost for Lupus Q&A



Dr. Emily Gillespie, University of Minnesota researcher who will present at the Lupus Foundation of Minnesota’s Lupus Conference on December 15, recently sat down with MinnPost contributor Susan Perry to discuss lupus and its complications, current research and even mortality.  The Q & A-formatted interview can be viewed on the MinnPost website: Continue Reading →


LupusMN.org
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Introducing Kim, Lupus Ambassador

Hello everyone! I’m Kim, one of the 2012 Lupus Ambassadors for LFM. We may have even met at the Twin Cities, Rochester and Duluth Lupus Walks for Hope, or at the Lupus Night at Target Field this past year.

For those of us living with lupus, 2012 has been an exciting year filled with hope, amazing awareness efforts, breakthroughs in research and increased public donations to find a cure. I’ve seen this on a national level, but quite extensively here in ...

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Kim Zink
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