The first time I heard anything about a support group was when a woman came into my hospital room. She too had lupus and came to ask me to start a group. At the time, I couldn’t even get out of bed.
In the next couple of months, as we searched for information on lupus, we continued to hear the same words, “Would you start a support group?” With the help of the Lupus Foundation of Minnesota, Dave and I started a lupus support group in Bismarck, North Dakota, in April of 1990.
LFM offered training seminars, retreats and brochures on lupus to get us started. We found it wasn’t as hard as we thought. Overall, people just needed a place to share their feelings and talk to someone who understood what they were going through. We have learned so much just by sharing our stories.
The lady who first approached me in the hospital never did come to the support group. But, ...Continue Reading →