Marking a milestone: looking back on my lupus diagnosis
If you have ever been sick, please read. If you haven’t, count your blessings and please keep reading.
The day is March 10 and this day six years ago marks the first day down a hellish six-month path to lupus. I had nighttime fevers for two nights until I walked into urgent care. This was the beginning of a whirlwind crisis; I was advised to rush to the ER.
It was thought I had an infection of some sort, but nothing was showing ...Continue Reading →
Disruptions to best laid plans and intentions
When I took to the role of Ambassador, I was excited to help promote all the events and learning experiences the Lupus Foundation of Minnesota (LFM) has to offer. I have participated in many events and have always come away with new knowledge and, most importantly, a great sense of fulfillment from spending time with fellow individuals living with lupus. I was happy to represent the Foundation and looked forward to further connecting with others living with this disease.
As many ...Continue Reading →
Weighing the risks of pregnancy after two losses
October 24 is the date of my upcoming wedding. This is a very exciting time and I cannot wait to marry my best friend. With that being said, I also have a lot of anxiety because after the wedding and honeymoon, we are going to try having a baby.
In 2016, it will be 10 years since the first time I was pregnant which ended in complete devastation. I will never forget sitting excitedly in the doctor’s office waiting to once ...Continue Reading →
Fighting lupus with my support team by my side
“You’re going to need someone around to help when you are old and stuck in your hydraulic bed” was one of the first things my soon-to-be husband said to me before we were dating and he was trying to get close to me. At first, I thought it was really funny and quite cute, but then I realized this could be a real thing in my life, and the fact that he wanted to be there to help me really ...Continue Reading →
Introducing 2015 Lupus Co-Ambassador Larry Norgren
My name is Larry Norgren and I am honored to be one of this year’s Lupus Ambassadors for the Lupus Foundation of Minnesota (meet my fellow 2015 Lupus co-Ambassador Ashley Albertson here).
I was born in and went to school in Two Harbors and got married and raised my family there. I have two grown children, a son and a daughter, as well as one adult grandson. After graduating from high school, I started working at the Reserve Mining Company in Silver Bay. After 20 years there, the plant closed down and I had the opportunity to go to school at Hibbing Community College. After graduating with a degree in Radiological Technology,…
Continue Reading →
Introducing 2015 Lupus Co-Ambassador Ashley Albertson
My name is Ashley Albertson and I am one of this year’s Lupus Ambassadors for the Lupus Foundation of Minnesota (meet my fellow 2015 Lupus co-Ambassador Larry Norgren here).
I was diagnosed with lupus in 2009 after delivering two stillborns (at 18 weeks and 28 weeks gestation) and two years of intensive testing. I currently live in the St. Paul area with my fiancé Justin and two stepdaughters, Megan (9) and Anna (7). Working at BOB-FM 106.1, I thought my unique position as an on-air personality could really help spread the word and bring awareness to lupus.…
Continue Reading →
Thinking of summer in the middle of winter
Summer time is a great time for family fun and vacations. This past summer, we took our family – all 12 of us! – to Wisconsin Dells and had a great time enjoying the water rides under the bright blue, sunny sky.
In the midst of it all comes the question of “where do we park Grandma?” Everyone’s on the lookout for the most shade for me. They wheeled me up and down through the park, so I could watch the fun. ...Continue Reading →
For those of you who have lost your hair, it can be very devastating, to say the least. As a rule, we want to look good. Looking good makes us feel good.
When I lost my hair the first time, my husband and mom bought me a good wig. At first, I was very self-conscious about it. We didn’t say anything to the girls about my wig. They walked past me a few times and one of them stopped, backed up, ...Continue Reading →
Would a giant horn do the trick? A test of active listening
Most North Dakota and Minnesota people are very friendly. We pass by each other and usually greet each other with “Hi, how are you?”
I had just left our support group, where we were talking about whether or not people really want to know how you’re feeling. Do they really listen to our answer? Even when you say, “Not so great,” they reply, “Oh, but you look so good!” At times, I wish a giant horn would grow out of my forehead to let them know that I really don’t feel good.
Leaving our support group that day, thinking about this, I decided to do a little experiment of my own. I happened to run into a classmate I hadn’t seen for quite a while. I greeted her with “Hi, how are you?”…
Continue Reading →
Support through a support group
The first time I heard anything about a support group was when a woman came into my hospital room. She too had lupus and came to ask me to start a group. At the time, I couldn’t even get out of bed.
In the next couple of months, as we searched for information on lupus, we continued to hear the same words, “Would you start a support group?” With the help of the Lupus Foundation of Minnesota, Dave and I started ...Continue Reading →