Posts Tagged 'Lupus Foundation of Minnesota'

Introducing 2014 Lupus Ambassador Jan Jundt

Hi! My name is Jan Jundt. I’ve been asked to be the 2014 Lupus Ambassador. I was very honored and surprised that our three daughters nominated me. Thanks, girls!

I look forward to sharing “our” journey with you. From the beginning, we have always referred to my having lupus as we (our family) having lupus. As you can well imagine, how mom is feeling makes a difference in how and what we do. At first, I worried about spoiling family outings ...

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Jan Jundt
Jan Jundt
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My pregnancy first scare

Being pregnant adds a whole new meaning to a lupus scare. It’s not just you you’re looking after.

I woke up one morning and took my socks off. They weren’t very tight socks, but they had left big indents and my legs were very swollen. I had suspected a little swelling over the course of a few days, but didn’t think anything of it really.

But when I noticed it in the morning, it threw me off a little bit. With my ...

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kristiebauer
kristiebauer
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Support comes in all forms

Lupus is a chronic disease which means it’s something that is life-long with no cure. I am doing well today, but that does not mean that’s true tomorrow. I knew I would be dealing with lupus for the rest of my life. Given that, I quickly realized I would have to rely on, and ask for support, from those around me. For someone who is fiercely independent and rather “Type A,” this is very humbling. Asking for help used to ...

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chriscronick
chriscronick
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From bed to bench and from bench to bed

The Lupus Foundation of Minnesota Fellowship was (no exaggeration) the most productive, meaningful, and inspirational experience I could have imagined my summer to be. Not only did I gain research experience and scientific communication skills, but I met peers, mentors, and patients who impacted my perspective on clinical and translational research.

Having the opportunity to interact with patients during my fellowship (with the courtesy of my PI, Dr. Erik Peterson) significantly and positively affected my fellowship experience. I am ...

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ayamamoto
ayamamoto
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Flares and bad days

When you have lupus, you have periods of disease remission and flares. Remission may seem like the disease is gone, but the reality is it never goes away; it’s just quiet. A lupus flare is a period of heightened disease activity which for me, ranges from mild to moderate and to severe. I’ve had both remission and flares all in the same day. Lupus turns on me that fast. After being diagnosed, I’ve become very aware of how I am ...

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chriscronick
chriscronick
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Confirming my future direction

Before the start of this fellowship, I was contemplating whether I wanted to go into medicine, research, or both. Upon talking to many mentors, I was leaning towards going into practicing medicine, but finding a way to also stay involved with research. However, although I have had a passion and interest in both for quite a while now, I wanted to experience more before I made the decision.

After the first several weeks of the fellowship under Dr. Peterson, I ...

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ayamamoto
ayamamoto
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Introducing My Lupus Research Project

My name is Ami Yamamoto, and I have the great opportunity of being one of the Lupus Foundation of Minnesota’s  Student Summer Fellows for 2013. This summer, I am studying under Erik Peterson, M.D., in the Department of Rheumatic and Autoimmune Diseases at the University of Minnesota–Twin Cities.

As I will write about in more detail in a later post, my project is to contribute to research on the gene PTPN22 which Dr. Peterson and his team thinks ...

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ayamamoto
ayamamoto
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My “New Normal”

As I’m thinking of ideas to blog about, it occurred to me to talk about some of the topics I find myself discussing with friends and family. Most people have heard of lupus but many don’t really know how life-altering it is. I sure didn’t.
 
When I was diagnosed nearly three years ago, I knew very little about lupus. I knew it’s an autoimmune disease meaning that my body is basically attacking itself. I knew of people who got ...

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chriscronick
chriscronick
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Introducing 2013 Lupus Ambassador Chris Cronick

My name is Chris Cronick and I’m honored to have been chosen as the 2013 Lupus Ambassador for the Lupus Foundation of Minnesota (LFM). I’m 37 and I was diagnosed with lupus in 2010. Prior to my diagnosis, I was in and out of the hospital for six months. It was a very scary time, not knowing what was wrong. I was tested for everything, but eventually was diagnosed with lupus SLE.

I have found that many times those ...

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chriscronick
chriscronick
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Local lupus study recruiting participants

SLE is an autoimmune disease capable of causing severe tissue damage in many organs. The cause of SLE is unknown, but recent research has identified infection-fighting proteins called interferons (or IFNs) which are made and released by host cells in response to the presence of pathogens such as viruses, bacteria, parasites or tumor cells. IFNs allow for communication between cells to trigger the protective defenses of the immune system that eradicate pathogens or tumors.

In this ...

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