Posts Tagged 'lupus'

Flares and bad days

When you have lupus, you have periods of disease remission and flares. Remission may seem like the disease is gone, but the reality is it never goes away; it’s just quiet. A lupus flare is a period of heightened disease activity which for me, ranges from mild to moderate and to severe. I’ve had both remission and flares all in the same day. Lupus turns on me that fast. After being diagnosed, I’ve become very aware of how I am ...

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chriscronick
chriscronick
0

Confirming my future direction

Before the start of this fellowship, I was contemplating whether I wanted to go into medicine, research, or both. Upon talking to many mentors, I was leaning towards going into practicing medicine, but finding a way to also stay involved with research. However, although I have had a passion and interest in both for quite a while now, I wanted to experience more before I made the decision.

After the first several weeks of the fellowship under Dr. Peterson, I ...

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ayamamoto
ayamamoto
1

Channeling My Passion

I have had a passion for medicine and research since mid-high school. However, I was not sure about whether I would pursue one, the other, both, or the integration of the two as my future career.

At the start of my undergraduate career, I was set on trying to get into the M.D., Ph.D. program to integrate the two fields, as well as apply myself in both settings, as I always loved biology and medicine and had experience with clinical and ...

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ayamamoto
ayamamoto
0

My “New Normal”

As I’m thinking of ideas to blog about, it occurred to me to talk about some of the topics I find myself discussing with friends and family. Most people have heard of lupus but many don’t really know how life-altering it is. I sure didn’t.
 
When I was diagnosed nearly three years ago, I knew very little about lupus. I knew it’s an autoimmune disease meaning that my body is basically attacking itself. I knew of people who got ...

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chriscronick
chriscronick
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Introducing 2013 Lupus Ambassador Chris Cronick

My name is Chris Cronick and I’m honored to have been chosen as the 2013 Lupus Ambassador for the Lupus Foundation of Minnesota (LFM). I’m 37 and I was diagnosed with lupus in 2010. Prior to my diagnosis, I was in and out of the hospital for six months. It was a very scary time, not knowing what was wrong. I was tested for everything, but eventually was diagnosed with lupus SLE.

I have found that many times those ...

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chriscronick
chriscronick
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Local lupus study recruiting participants

SLE is an autoimmune disease capable of causing severe tissue damage in many organs. The cause of SLE is unknown, but recent research has identified infection-fighting proteins called interferons (or IFNs) which are made and released by host cells in response to the presence of pathogens such as viruses, bacteria, parasites or tumor cells. IFNs allow for communication between cells to trigger the protective defenses of the immune system that eradicate pathogens or tumors.

In this ...

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lupus_admin
1

Come hell or high water

“I recommend that you take the medication each day, come hell or high water.”

I sometimes use this cliché’ phrase as I counsel patients suffering with Systemic Lupus Erythematosus (SLE). Clinical research shows that diligence and persistence in use of immune system-modulating drugs is important for optimal disease control for many people with SLE. Some drugs need to be taken day in and day out, for months or years, to be most effective. Repeated clinic visits, blood monitoring requirements, pharmacy charges, ...

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epeterson
0

A hesitant beginning to a happy commitment

2012 began for me with the Lupus Foundation of Minnesota asking me to be an ambassador for their organization. I was initially hesitant for a couple reasons. One was the lengthy flare I had been dealing with from the recent, and very sad, death of my father – I wasn’t sure if I would be able to follow through. The second reason was my ongoing, on-and-off lupus diagnosis – I wasn’t convinced that I would be a very good ...

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kzink
1

Inflammation

It is with the heaviest of hearts that I recently learned of the loss of a young, athletic lady, taken by complications of her disease activity. I really don’t believe there is anything that grabs the attention more of those afflicted with lupus, than the unexpected death of a fellow lupus fighter. My deepest sympathy and heartfelt wishes to the McHale family as they mourn the loss of their 23 year-old daughter, Sasha.

Straight-up, lupus is cruel. It doesn’t distinguish between ...

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kzink
0

Choosing How I Want to Use My Energy

Today I was fortunate enough to come home from work early and take a nap. I work full time and even though my job is protected through FMLA, I can only use so much of that during a month. Some days I don’t feel bad enough to stay home, but I don’t feel good enough to work all day either. Plus I know that pushing myself can sometimes be detrimental and cause a flare.

For me, having lupus is an everyday ...

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galexander
0
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