Posts Tagged 'Living with Lupus'

Hair Loss

Pensive woman looking off into the distanceFor those of you who have lost your hair, it can be very devastating, to say the least. As a rule, we want to look good. Looking good makes us feel good.

When I lost my hair the first time, my husband and mom bought me a good wig. At first, I was very self-conscious about it. We didn’t say anything to the girls about my wig. ...

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Jan Jundt
Jan Jundt
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Would a giant horn do the trick? A test of active listening

Most North Dakota and Minnesota people are very friendly. We pass by each other and usually greet each other with “Hi, how are you?”

I had just left our support group, where we were talking about whether or not people really want to know how you’re feeling. Do they really listen to our answer? Even when you say, “Not so great,” they reply, “Oh, but you look so good!” At times, I wish a giant horn would grow out of my forehead ...

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Jan Jundt
Jan Jundt
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Support through a support group

The first time I heard anything about a support group was when a woman came into my hospital room. She too had lupus and came to ask me to start a group. At the time, I couldn’t even get out of bed.

In the next couple of months, as we searched for information on lupus, we continued to hear the same words, “Would you start a support group?” With the help of the Lupus Foundation of Minnesota, Dave and I started ...

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Jan Jundt
Jan Jundt
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Family support

How could I be so lucky to have such wonderful family support?! My family has given of themselves in so many ways, helping me with physical and personal needs. They do little things that they don’t think are much at all, but they are everything to me.

When I was so sick 25 years ago, my husband knew how much I needed to hold my girls. He picked each one up and put them in my hospital bed with me, despite ...

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Jan Jundt
Jan Jundt
0

The power of faith and prayer

I was very humbled to find out so many of our friends and family started prayer chains for me. Coast to coast, there were prayers for my health and my family.

I ran into a former coworker. We exchanged stories trying to get caught up. In the few minutes we were able to talk, I told her about my lupus and she told me for two years she had been praying for a lady with lupus. She did not know the ...

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Jan Jundt
Jan Jundt
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Worrying. . .

You worry about your children from the minute they are born. But when you know they could also have lupus, you worry even more. Then you add grandchildren to the mix and the worry becomes enormous.

All the worrying in the world won’t change anything. So, we have tried, as a family, to be as educated as we can be about lupus. Watch for the tell-tale signs and behaviors of lupus, with the hopes of cutting it off at the pass, ...

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Jan Jundt
Jan Jundt
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Lupus affects the whole family

Our young family was hit hard and fast 25 years ago when I was first attacked by lupus. My family was forced to deal with the harsh reality of me being in ICU for a month and needing months of care afterwards. The daily care of my young family fell on others, while Dave spent night and day with me. We were blessed to have my parents close at hand. They stepped in to provide the care for the ...

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Jan Jundt
Jan Jundt
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Introducing 2014 Lupus Ambassador Jan Jundt

Hi! My name is Jan Jundt. I’ve been asked to be the 2014 Lupus Ambassador. I was very honored and surprised that our three daughters nominated me. Thanks, girls!

I look forward to sharing “our” journey with you. From the beginning, we have always referred to my having lupus as we (our family) having lupus. As you can well imagine, how mom is feeling makes a difference in how and what we do. At first, I worried about spoiling family outings ...

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Jan Jundt
Jan Jundt
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It’s a boy!

Welcome to the world Kevin Charles Bauer!

Today would have been my due date. Our little man decided to come into the world a little early. I was at 38 weeks and 4 days when Pete and I went into the hospital on Thursday, March 6 around 1 p.m.

I held off on getting pain medicine to see how things went. Like I said in previous blogs, I didn’t really have a birth plan because I didn’t know what to expect. I ...

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Kristie Bauer
Kristie Bauer
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The unknowns (34 weeks)

As I get closer to my due date, I’ve been thinking about how things might play out. One of my least favorite things about lupus is how little control I have over it. Outside of keeping stress low and eating healthy (you know, the stuff everyone should do,) lupus is completely unpredictable. One week I can be considered stable and the next week I could end up in the hospital for six days (this has actually happened). My lupus being ...

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Kristie Bauer
Kristie Bauer
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