Valuing support systems and spinning it into the next step

The thought of becoming a Lupus Ambassador started for me while I was at the 2014 Lupus Walk for Hope and listening to the stories shared by the ambassadors before it began. I thought to myself, “I really want to be in that role so I can inspire others the way they inspire me.”

After finding out that I had the honor of representing the Lupus Foundation of Minnesota as one of their ambassadors, I was overjoyed. I set out on ...

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Raising awareness of the silent warriors and our battle with lupus

When I was chosen to be one of the three Lupus Ambassadors of 2016, I honestly had no idea what to think or expect. I obviously knew the general outline of my expectations based on the role description, but I certainly didn’t know what I was going to experience yet. I met my co-ambassadors and was amazed at their stories, and knew right away we’d make a great team. I found out that being a Lupus Ambassador was honestly as ...

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The story continues: grasping the magnitude of my lupus

In the fall of 2009, my biopsies were non-conclusive. I had some type of muscle atrophy they could only treat with pain medications and steroids. I went to the Mayo Clinic and was diagnosed with a connective skin tissue disorder, which they believed was the root cause behind my hair was falling out and areas of skin blistering, so I was given topical creams. I was never given a firm diagnosis of lupus.

I began to seek alternative therapies. I visited ...

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Living with lupus as a teenager and what it has taught me

There are times when I sit down and realize how easy it has been to forget who I used to be. Not just as a person, but health-wise, both physically and mentally.

Don’t get me wrong, the number of blessings I have received over the 17 years of my life are numerous, and I am forever thankful for those treasures that got me through the troubles of life. After all, life is no wish-granting factory, as John Green said in his ...

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Marking a milestone: looking back on my lupus diagnosis

If you have ever been sick, please read. If you haven’t, count your blessings and please keep reading.

The day is March 10 and this day six years ago marks the first day down a hellish six-month path to lupus. I had nighttime fevers for two nights until I walked into urgent care. This was the beginning of a whirlwind crisis; I was advised to rush to the ER.

It was thought I had an infection of some sort, but nothing was showing ...

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Disruptions to best laid plans and intentions

When I took to the role of Ambassador, I was excited to help promote all the events and learning experiences the Lupus Foundation of Minnesota (LFM) has to offer. I have participated in many events and have always come away with new knowledge and, most importantly, a great sense of fulfillment from spending time with fellow individuals living with lupus. I was happy to represent the Foundation and looked forward to further connecting with others living with this disease.

As many ...

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Weighing the risks of pregnancy after two losses

October 24 is the date of my upcoming wedding. This is a very exciting time and I cannot wait to marry my best friend. With that being said, I also have a lot of anxiety because after the wedding and honeymoon, we are going to try having a baby.

In 2016, it will be 10 years since the first time I was pregnant which ended in complete devastation. I will never forget sitting excitedly in the doctor’s office waiting to once ...

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Fighting lupus with my support team by my side

“You’re going to need someone around to help when you are old and stuck in your hydraulic bed” was one of the first things my soon-to-be husband said to me before we were dating and he was trying to get close to me. At first, I thought it was really funny and quite cute, but then I realized this could be a real thing in my life, and the fact that he wanted to be there to help me really ...

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Introducing 2015 Lupus Co-Ambassador Larry Norgren

My name is Larry Norgren and I am honored to be one of this year’s Lupus Ambassadors for the Lupus Foundation of Minnesota (meet my fellow 2015 Lupus co-Ambassador Ashley Albertson here).

I was born in and went to school in Two Harbors and got married and raised my family there. I have two grown children, a son and a daughter, as well as one adult grandson. After graduating from high school, I started ...

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Introducing 2015 Lupus Co-Ambassador Ashley Albertson

My name is Ashley Albertson and I am one of this year’s Lupus Ambassadors for the Lupus Foundation of Minnesota (meet my fellow 2015 Lupus co-Ambassador Larry Norgren here).

I was diagnosed with lupus in 2009 after delivering two stillborns (at 18 weeks and 28 weeks gestation) and two years of intensive testing. I currently live in the St. Paul area with my fiancé Justin and two stepdaughters, Megan (9) and Anna (7). Working ...

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