Posts Tagged 'living with lupus'

Family support

How could I be so lucky to have such wonderful family support?! My family has given of themselves in so many ways, helping me with physical and personal needs. They do little things that they don’t think are much at all, but they are everything to me.

When I was so sick 25 years ago, my husband knew how much I needed to hold my girls. He picked each one up and put them in my hospital bed with me, despite ...

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Jan Jundt
Jan Jundt
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The power of faith and prayer

I was very humbled to find out so many of our friends and family started prayer chains for me. Coast to coast, there were prayers for my health and my family.

I ran into a former coworker. We exchanged stories trying to get caught up. In the few minutes we were able to talk, I told her about my lupus and she told me for two years she had been praying for a lady with lupus. She did not know the ...

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Jan Jundt
Jan Jundt
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Worrying. . .

You worry about your children from the minute they are born. But when you know they could also have lupus, you worry even more. Then you add grandchildren to the mix and the worry becomes enormous.

All the worrying in the world won’t change anything. So, we have tried, as a family, to be as educated as we can be about lupus. Watch for the tell-tale signs and behaviors of lupus, with the hopes of cutting it off at the pass, ...

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Jan Jundt
Jan Jundt
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Lupus affects the whole family

Our young family was hit hard and fast 25 years ago when I was first attacked by lupus. My family was forced to deal with the harsh reality of me being in ICU for a month and needing months of care afterwards. The daily care of my young family fell on others, while Dave spent night and day with me. We were blessed to have my parents close at hand. They stepped in to provide the care for the ...

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Jan Jundt
Jan Jundt
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Introducing 2014 Lupus Ambassador Jan Jundt

Hi! My name is Jan Jundt. I’ve been asked to be the 2014 Lupus Ambassador. I was very honored and surprised that our three daughters nominated me. Thanks, girls!

I look forward to sharing “our” journey with you. From the beginning, we have always referred to my having lupus as we (our family) having lupus. As you can well imagine, how mom is feeling makes a difference in how and what we do. At first, I worried about spoiling family outings ...

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Jan Jundt
Jan Jundt
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It’s a boy!

Welcome to the world Kevin Charles Bauer!

Today would have been my due date. Our little man decided to come into the world a little early. I was at 38 weeks and 4 days when Pete and I went into the hospital on Thursday, March 6 around 1 p.m.

I held off on getting pain medicine to see how things went. Like I said in previous blogs, I didn’t really have a birth plan because I didn’t know what to expect. I ...

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kristiebauer
kristiebauer
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The unknowns (34 weeks)

As I get closer to my due date, I’ve been thinking about how things might play out. One of my least favorite things about lupus is how little control I have over it. Outside of keeping stress low and eating healthy (you know, the stuff everyone should do,) lupus is completely unpredictable. One week I can be considered stable and the next week I could end up in the hospital for six days (this has actually happened). My lupus being ...

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kristiebauer
kristiebauer
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Another big milestone: 32 weeks

During pregnancy, there are several big milestones. I’m not sure how the milestones differ from my pregnancy to a normal risk pregnancy but I would imagine they are similar.

The first big milestone is getting past the first trimester. Like I said in my previous blog post, the first trimester for me is huge since the risk of miscarriage is high. Pete and I did not tell our family we were expecting until after we got through that first trimester.

The next ...

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kristiebauer
kristiebauer
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Celebrating my birthday with some unexpected and unexplained surprises

Just before Christmas was my 27th birthday. I’m at an age now where birthdays are not that important to me. Turning 27 is not a special age. But for some reason, my 27th birthday did not want to go on unnoticed.

The night before my birthday I was at my mom’s, celebrating not just mine, but my nephew Hunter’s birthday, as his is three days before mine. As soon as I got there, I started getting horrible cramps and didn’t feel ...

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kristiebauer
kristiebauer
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The top five ways you can help as a caregiver

My husband and primary caregiver, Patrick, wants to get in on the blogging, so I’m turning this post over to him. Here it goes:

Hi all!

My name is Patrick Spott and I thank you for this opportunity to “speak” on the topic of “caregiving.” Some of you may know that my wife Chris was the 2013 Lupus Foundation of Minnesota (LFM) Ambassador. Our 14 years of marriage have been burdened not only with lupus, but rheumatoid arthritis, celiac disease and a ...

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chriscronick
chriscronick
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