The story continues: grasping the magnitude of my lupus
In the fall of 2009, my biopsies were non-conclusive. I had some type of muscle atrophy they could only treat with pain medications and steroids. I went to the Mayo Clinic and was diagnosed with a connective skin tissue disorder, which they believed was the root cause behind my hair was falling out and areas of skin blistering, so I was given topical creams. I was never given a firm diagnosis of lupus.
I began to seek alternative therapies. I visited ...Continue Reading →
Living with lupus as a teenager and what it has taught me
There are times when I sit down and realize how easy it has been to forget who I used to be. Not just as a person, but health-wise, both physically and mentally.
Don’t get me wrong, the number of blessings I have received over the 17 years of my life are numerous, and I am forever thankful for those treasures that got me through the troubles of life. After all, life is no wish-granting factory, as John Green said in his ...Continue Reading →
Marking a milestone: looking back on my lupus diagnosis
If you have ever been sick, please read. If you haven’t, count your blessings and please keep reading.
The day is March 10 and this day six years ago marks the first day down a hellish six-month path to lupus. I had nighttime fevers for two nights until I walked into urgent care. This was the beginning of a whirlwind crisis; I was advised to rush to the ER.
It was thought I had an infection of some sort, but nothing was showing ...Continue Reading →
Disruptions to best laid plans and intentions
When I took to the role of Ambassador, I was excited to help promote all the events and learning experiences the Lupus Foundation of Minnesota (LFM) has to offer. I have participated in many events and have always come away with new knowledge and, most importantly, a great sense of fulfillment from spending time with fellow individuals living with lupus. I was happy to represent the Foundation and looked forward to further connecting with others living with this disease.
As many ...Continue Reading →
Weighing the risks of pregnancy after two losses
October 24 is the date of my upcoming wedding. This is a very exciting time and I cannot wait to marry my best friend. With that being said, I also have a lot of anxiety because after the wedding and honeymoon, we are going to try having a baby.
In 2016, it will be 10 years since the first time I was pregnant which ended in complete devastation. I will never forget sitting excitedly in the doctor’s office waiting to once ...Continue Reading →
Fighting lupus with my support team by my side
“You’re going to need someone around to help when you are old and stuck in your hydraulic bed” was one of the first things my soon-to-be husband said to me before we were dating and he was trying to get close to me. At first, I thought it was really funny and quite cute, but then I realized this could be a real thing in my life, and the fact that he wanted to be there to help me really ...Continue Reading →
Introducing 2015 Lupus Co-Ambassador Larry Norgren
My name is Larry Norgren and I am honored to be one of this year’s Lupus Ambassadors for the Lupus Foundation of Minnesota (meet my fellow 2015 Lupus co-Ambassador Ashley Albertson here).
I was born in and went to school in Two Harbors and got married and raised my family there. I have two grown children, a son and a daughter, as well as one adult grandson. After graduating from high school, I started working at the Reserve Mining Company in Silver Bay. After 20 years there, the plant closed down and I had the opportunity to go to school at Hibbing Community College. After graduating with a degree in Radiological Technology,…
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Introducing 2015 Lupus Co-Ambassador Ashley Albertson
My name is Ashley Albertson and I am one of this year’s Lupus Ambassadors for the Lupus Foundation of Minnesota (meet my fellow 2015 Lupus co-Ambassador Larry Norgren here).
I was diagnosed with lupus in 2009 after delivering two stillborns (at 18 weeks and 28 weeks gestation) and two years of intensive testing. I currently live in the St. Paul area with my fiancé Justin and two stepdaughters, Megan (9) and Anna (7). Working at BOB-FM 106.1, I thought my unique position as an on-air personality could really help spread the word and bring awareness to lupus.…
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P.A.L. Series – List: checking all the boxes
Continuing your health care advocacy work toward your ultimate health care goal, we’ve made it through the “P” and the “A” of the P.A.L. tool. Now comes the business part of your appointment, and this is where the third factor comes into play, Listing.
This is where you tie up all the loose ends and make sure you have accounted for everything you had hoped to accomplish in this health care meeting. Consider making a physical or mental check list to see if you’ve covered all your bases. To ensure that you have at least five minutes to review, initially notify your doctor that you’d like to allow a final five minutes for this.…
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P.A.L. Series – Ask: be a detective
Lailah Gifty Akita said, “The power of asking is the key to abundance living.” Keeping in mind your ultimate health care goal, which we establish in the first post of this series, we move on today to the Ask portion of the P.A.L. tool for being your best health care advocate. (Make sure you hit the Prepare post, as it will help with this one.)
The best way to be your best health advocate is to ask questions like a detective. Keep digging until you are satisfied that your questions have been answered. Yes, you might be thought of as “that person who asks a million questions,” but, just like a detective, it’s up to you to get the answers you need.…
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