Lupus affects the whole family
Our young family was hit hard and fast 25 years ago when I was first attacked by lupus. My family was forced to deal with the harsh reality of me being in ICU for a month and needing months of care afterwards. The daily care of my young family fell on others, while Dave spent night and day with me. We were blessed to have my parents close at hand. They stepped in to provide the care for the ...Continue Reading →
Introducing 2014 Lupus Ambassador Jan Jundt
Hi! My name is Jan Jundt. I’ve been asked to be the 2014 Lupus Ambassador. I was very honored and surprised that our three daughters nominated me. Thanks, girls!
I look forward to sharing “our” journey with you. From the beginning, we have always referred to my having lupus as we (our family) having lupus. As you can well imagine, how mom is feeling makes a difference in how and what we do. At first, I worried about spoiling family outings ...Continue Reading →
Uniting for a common purpose
We recently finished the Lupus Walk for Hope and 5K in Plymouth on September 14, Rochester on September 28, and the last event in Duluth on October 5. Time has flown by, as it seems like it was just last week we were in Duluth. I’m grateful to have participated in all three Walk/5Ks and even more grateful my body decided to cooperate with me through the weather, travel, and excitement of it all.
As Ambassador, I’ve had the pleasure of ...Continue Reading →
Support comes in all forms
Lupus is a chronic disease which means it’s something that is life-long with no cure. I am doing well today, but that does not mean that’s true tomorrow. I knew I would be dealing with lupus for the rest of my life. Given that, I quickly realized I would have to rely on, and ask for support, from those around me. For someone who is fiercely independent and rather “Type A,” this is very humbling. Asking for help used to ...Continue Reading →
The good days
Have you ever heard the phrase “It’s a good day.” said by someone who has health issues? Many people with chronic illness know what good days and bad days are. For me, a good day with lupus means I can move relatively free without pain, I think clearly, and I can do many of the (sometimes simplest) things on my to-do list.
Sounds easy enough, right? Well, if you’ve read my previous blog post, “Flares and bad days,” you can ...Continue Reading →
Flares and bad days
When you have lupus, you have periods of disease remission and flares. Remission may seem like the disease is gone, but the reality is it never goes away; it’s just quiet. A lupus flare is a period of heightened disease activity which for me, ranges from mild to moderate and to severe. I’ve had both remission and flares all in the same day. Lupus turns on me that fast. After being diagnosed, I’ve become very aware of how I am ...Continue Reading →
My “New Normal”
As I’m thinking of ideas to blog about, it occurred to me to talk about some of the topics I find myself discussing with friends and family. Most people have heard of lupus but many don’t really know how life-altering it is. I sure didn’t.Continue Reading →
When I was diagnosed nearly three years ago, I knew very little about lupus. I knew it’s an autoimmune disease meaning that my body is basically attacking itself. I knew of people who got ...
Introducing 2013 Lupus Ambassador Chris Cronick
My name is Chris Cronick and I’m honored to have been chosen as the 2013 Lupus Ambassador for the Lupus Foundation of Minnesota (LFM). I’m 37 and I was diagnosed with lupus in 2010. Prior to my diagnosis, I was in and out of the hospital for six months. It was a very scary time, not knowing what was wrong. I was tested for everything, but eventually was diagnosed with lupus SLE.
I have found that many times those ...Continue Reading →
A hesitant beginning to a happy commitment
2012 began for me with the Lupus Foundation of Minnesota asking me to be an ambassador for their organization. I was initially hesitant for a couple reasons. One was the lengthy flare I had been dealing with from the recent, and very sad, death of my father – I wasn’t sure if I would be able to follow through. The second reason was my ongoing, on-and-off lupus diagnosis – I wasn’t convinced that I would be a very good ...Continue Reading →
It is with the heaviest of hearts that I recently learned of the loss of a young, athletic lady, taken by complications of her disease activity. I really don’t believe there is anything that grabs the attention more of those afflicted with lupus, than the unexpected death of a fellow lupus fighter. My deepest sympathy and heartfelt wishes to the McHale family as they mourn the loss of their 23 year-old daughter, Sasha.
Straight-up, lupus is cruel. It doesn’t distinguish between ...Continue Reading →