Support through a support group
The first time I heard anything about a support group was when a woman came into my hospital room. She too had lupus and came to ask me to start a group. At the time, I couldn’t even get out of bed.
In the next couple of months, as we searched for information on lupus, we continued to hear the same words, “Would you start a support group?” With the help of the Lupus Foundation of Minnesota, Dave and I started ...Continue Reading →
How could I be so lucky to have such wonderful family support?! My family has given of themselves in so many ways, helping me with physical and personal needs. They do little things that they don’t think are much at all, but they are everything to me.
When I was so sick 25 years ago, my husband knew how much I needed to hold my girls. He picked each one up and put them in my hospital bed with me, despite ...Continue Reading →
The power of faith and prayer
I was very humbled to find out so many of our friends and family started prayer chains for me. Coast to coast, there were prayers for my health and my family.
I ran into a former coworker. We exchanged stories trying to get caught up. In the few minutes we were able to talk, I told her about my lupus and she told me for two years she had been praying for a lady with lupus. She did not know the ...Continue Reading →
Worrying. . .
You worry about your children from the minute they are born. But when you know they could also have lupus, you worry even more. Then you add grandchildren to the mix and the worry becomes enormous.
All the worrying in the world won’t change anything. So, we have tried, as a family, to be as educated as we can be about lupus. Watch for the tell-tale signs and behaviors of lupus, with the hopes of cutting it off at the pass, ...Continue Reading →
Lupus affects the whole family
Our young family was hit hard and fast 25 years ago when I was first attacked by lupus. My family was forced to deal with the harsh reality of me being in ICU for a month and needing months of care afterwards. The daily care of my young family fell on others, while Dave spent night and day with me. We were blessed to have my parents close at hand. They stepped in to provide the care for the ...Continue Reading →
Introducing 2014 Lupus Ambassador Jan Jundt
Hi! My name is Jan Jundt. I’ve been asked to be the 2014 Lupus Ambassador. I was very honored and surprised that our three daughters nominated me. Thanks, girls!
I look forward to sharing “our” journey with you. From the beginning, we have always referred to my having lupus as we (our family) having lupus. As you can well imagine, how mom is feeling makes a difference in how and what we do. At first, I worried about spoiling family outings ...Continue Reading →
Uniting for a common purpose
We recently finished the Lupus Walk for Hope and 5K in Plymouth on September 14, Rochester on September 28, and the last event in Duluth on October 5. Time has flown by, as it seems like it was just last week we were in Duluth. I’m grateful to have participated in all three Walk/5Ks and even more grateful my body decided to cooperate with me through the weather, travel, and excitement of it all.
As Ambassador, I’ve had the pleasure of ...Continue Reading →
Support comes in all forms
Lupus is a chronic disease which means it’s something that is life-long with no cure. I am doing well today, but that does not mean that’s true tomorrow. I knew I would be dealing with lupus for the rest of my life. Given that, I quickly realized I would have to rely on, and ask for support, from those around me. For someone who is fiercely independent and rather “Type A,” this is very humbling. Asking for help used to ...Continue Reading →
The good days
Have you ever heard the phrase “It’s a good day.” said by someone who has health issues? Many people with chronic illness know what good days and bad days are. For me, a good day with lupus means I can move relatively free without pain, I think clearly, and I can do many of the (sometimes simplest) things on my to-do list.
Sounds easy enough, right? Well, if you’ve read my previous blog post, “Flares and bad days,” you can ...Continue Reading →
Flares and bad days
When you have lupus, you have periods of disease remission and flares. Remission may seem like the disease is gone, but the reality is it never goes away; it’s just quiet. A lupus flare is a period of heightened disease activity which for me, ranges from mild to moderate and to severe. I’ve had both remission and flares all in the same day. Lupus turns on me that fast. After being diagnosed, I’ve become very aware of how I am ...Continue Reading →