The story continues: grasping the magnitude of my lupus

In the fall of 2009, my biopsies were non-conclusive. I had some type of muscle atrophy they could only treat with pain medications and steroids. I went to the Mayo Clinic and was diagnosed with a connective skin tissue disorder, which they believed was the root cause behind my hair was falling out and areas of skin blistering, so I was given topical creams. I was never given a firm diagnosis of lupus.

I began to seek alternative therapies. I visited ...

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Disruptions to best laid plans and intentions

When I took to the role of Ambassador, I was excited to help promote all the events and learning experiences the Lupus Foundation of Minnesota (LFM) has to offer. I have participated in many events and have always come away with new knowledge and, most importantly, a great sense of fulfillment from spending time with fellow individuals living with lupus. I was happy to represent the Foundation and looked forward to further connecting with others living with this disease.

As many ...

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Weighing the risks of pregnancy after two losses

October 24 is the date of my upcoming wedding. This is a very exciting time and I cannot wait to marry my best friend. With that being said, I also have a lot of anxiety because after the wedding and honeymoon, we are going to try having a baby.

In 2016, it will be 10 years since the first time I was pregnant which ended in complete devastation. I will never forget sitting excitedly in the doctor’s office waiting to once ...

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Fighting lupus with my support team by my side

“You’re going to need someone around to help when you are old and stuck in your hydraulic bed” was one of the first things my soon-to-be husband said to me before we were dating and he was trying to get close to me. At first, I thought it was really funny and quite cute, but then I realized this could be a real thing in my life, and the fact that he wanted to be there to help me really ...

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Introducing 2015 Lupus Co-Ambassador Larry Norgren

My name is Larry Norgren and I am honored to be one of this year’s Lupus Ambassadors for the Lupus Foundation of Minnesota (meet my fellow 2015 Lupus co-Ambassador Ashley Albertson here).

I was born in and went to school in Two Harbors and got married and raised my family there. I have two grown children, a son and a daughter, as well as one adult grandson. After graduating from high school, I started ...

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Introducing 2015 Lupus Co-Ambassador Ashley Albertson

My name is Ashley Albertson and I am one of this year’s Lupus Ambassadors for the Lupus Foundation of Minnesota (meet my fellow 2015 Lupus co-Ambassador Larry Norgren here).

I was diagnosed with lupus in 2009 after delivering two stillborns (at 18 weeks and 28 weeks gestation) and two years of intensive testing. I currently live in the St. Paul area with my fiancé Justin and two stepdaughters, Megan (9) and Anna (7). Working ...

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Would a giant horn do the trick? A test of active listening

Most North Dakota and Minnesota people are very friendly. We pass by each other and usually greet each other with “Hi, how are you?”

I had just left our support group, where we were talking about whether or not people really want to know how you’re feeling. Do they really listen to our answer? Even when you say, “Not so great,” they reply, “Oh, but you look so good!” At times, I wish a giant horn would grow out of my forehead ...

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Support through a support group

The first time I heard anything about a support group was when a woman came into my hospital room. She too had lupus and came to ask me to start a group. At the time, I couldn’t even get out of bed.

In the next couple of months, as we searched for information on lupus, we continued to hear the same words, “Would you start a support group?” With the help of the Lupus Foundation of Minnesota, Dave and I started ...

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Family support

How could I be so lucky to have such wonderful family support?! My family has given of themselves in so many ways, helping me with physical and personal needs. They do little things that they don’t think are much at all, but they are everything to me.

When I was so sick 25 years ago, my husband knew how much I needed to hold my girls. He picked each one up and put them in my hospital bed with me, despite ...

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The power of faith and prayer

I was very humbled to find out so many of our friends and family started prayer chains for me. Coast to coast, there were prayers for my health and my family.

I ran into a former coworker. We exchanged stories trying to get caught up. In the few minutes we were able to talk, I told her about my lupus and she told me for two years she had been praying for a lady with lupus. She did not know the ...

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