News Stories

Celebrating LFM’s 40th Anniversary; several initiatives focus on research, support and education

Lupus E-News Story
published July 6, 2016

LFM turns 40 this year! Like one would do upon a 40th wedding anniversary or a 40th birthday, we’re reflecting upon from where we’ve come, where we’re going, and the people that have made us who we are today. A series of initiatives throughout the year are helping us celebrate as well as fundraise to continue into the next 40.

From the Desk of the President: Summer days are flying by

Lupus E-News Story
published July 6, 2016

For me, summer has always been much anticipated. The days are longer, the weather is usually nice, and family and friends who have been in winter hibernation present opportunities to get together. Yet the older I get, I always find myself asking the same question: where did summer go?

United for Lupus Awareness: Introducing 2016 Lupus Ambassadors

Lupus E-News Story
published July 6, 2016

When we met Katie, Meghan and Trish, we knew they were our 2016 Lupus Ambassadors. All three of them! Their stories, their passion for lupus awareness, and their willingness to be a face and voice for lupus got our attention.

Ask a Doctor: How can I advocate for my own health?

Lupus E-News Story
published July 6, 2016

A:  The U.S. health care system is complex and often difficult to navigate. However, patients who are more involved in their care are more likely to improve their health. Here are some steps you can take to be your own health care advocate:

Light up the night with this year’s Sludgeathon

Lupus E-News Story
published May 11, 2016

In anticipation of Cory Cove’s ninth annual Sludgeathon fundraiser next month, Mayor Betsy Hodges has officially proclaimed June 3 as Sludgeathon Day in Minneapolis, and the I-35W Bridge, thanks to MnDOT, will be aglow in lupus purple beginning at dusk that evening.

Leather Up for Lupus Charity Bike Ride

Lupus E-News Story
published May 11, 2016

Lupus awareness and fundraising takes to the road next month … specifically to Detroit Lakes, where the Fraternal Order of Eagles Detroit Lakes Aerie and Ladies Auxiliary #2342 will host a charity ride for lupus. On June 11, motorcycle riders and passengers are invited to join the Eagles for this day-long event, which begins with the ride itself and is followed by a social hour, hog roast dinner, and music.

26.2: Racing toward a lupus breakthrough

Lupus E-News Story
published May 11, 2016

Lupus impacts many beyond the individual living with the chronic autoimmune disease. It also affects family, friends, caregivers, and coworkers. Although treatment, medications, and a healthy lifestyle can help people with lupus live well with the disease, the battle is sometimes lost.

Megan Bertheaume understands this reality all too well. Her aunt …

From the Desk of the President: Hope in Lupus Awareness Month and LFM’s 40th Anniversary

Lupus E-News Story
published May 11, 2016

If you are an individual living with lupus or have a close family member with lupus, you likely know that May is Lupus Awareness Month. Recently, I had an opportunity to meet 2013 Lupus Ambassador Chris Cronick. If you have met Chris you know that she is a sharp, energetic individual with a passion for telling her story about being diagnosed and living with lupus daily.

Ask a Doctor: How can living with lupus affect my mental health?

Lupus E-News Story
published May 11, 2016

In considering this question, it’s important to start by defining mental health, an often misunderstood term. I like the World Health Organization’s (2016) definition because it takes a holistic approach: “mental health is defined as a state of well-being in which every individual realizes his or her own potential, can cope with the normal stresses of life, can work productively and fruitfully, and is able to make a contribution to her or his community.”

Cory Cove’s Marathon Broadcast Fundraises for Lupus

Plymouth Magazine article by Dan Emerson
published April 2016

Sports radio host Cory Cove didn’t plan on becoming a major fundraiser for a disease he knew nothing about. But fortunately for the Minnesota Lupus Foundation and its growing constituency, that’s exactly what happened, beginning about a decade ago, to the 35-year-old KFAN personality.

Ask a Doctor: Why are African-American women three times more likely to get lupus than white women, and why do African-American women tend to develop lupus at a younger age and have more severe symptoms than white women?

Lupus E-News Story
published March 2, 2016

We don’t fully know the answers to these questions yet, but researchers are working hard to discover them. They believe that the answers will go beyond race, and they hope they will reveal modifiable risk factors; that is, factors that patients and/or their caregivers could potentially take action to change. These could be keys to reducing such disparities.

One likely culprit is genetics. There are many genetic factors…

From the Desk of the President: Focusing on staff and volunteer appreciation

Lupus E-News Story
published March 2, 2016

Nothing makes a non-profit organization tick more than a dedicated board, hard-working volunteers, and a sharply-focused staff. I feel fortunate and honored to be working at an organization where all those elements are in full-force.

Special thanks to LFM’s outgoing board members: acknowledging two individuals who provided a combined total of nearly 20 years of service to support those living with lupus

Lupus E-News Story
published January 6, 2016

As we begin a new year, the Lupus Foundation of Minnesota (LFM) offers appreciation to Lynn Clarey and Dale Allen Berry, two outgoing members, for their generosity and support in serving on LFM’s Board of Directors.

The relationship between lupus and dermatology: learning the basics behind lupus and skin-related diseases

Lupus E-News Story
published January 6, 2016

Approximately 85 percent of people living with lupus have lupus-related skin diseases, also known as cutaneous lupus erythematosus (CLE). To gain a better understanding of the relationship between lupus and dermatology, we invited dermatologist Dr. Noah Goldfarb to respond to some frequently asked questions.

Ask a Doctor: Many doctors have informed me that I should not have any immunizations because it may cause a flare of my lupus. If so, are there any immunizations that won’t cause such a reaction?

Lupus E-News Story
published January 6, 2016

The decision to receive any medical intervention should come down to evaluation of the potential risks and benefits.

Patients with lupus have a higher baseline risk of infection due to impaired immune response. These types of infection are mostly bacterial, followed by viral and fungal. Additionally, many patients with lupus are treated with prednisone or other immunosuppressive medications, which may further increase risk of infection. Interestingly, antimalarials such as hydroxychloroquine have a protective effect against infection, in addition to other benefits in controlling lupus activity.

Congratulations to 2016 lupus clinical research grant recipients

Lupus E-News Story
published January 6, 2016

As we continue to support current research efforts to help realize our vision of a world without lupus, we are proud to present our lupus clinical research grant recipients for 2016. Totaling over $70,000, these grants have been awarded to two Minnesota-based researchers, Erik Peterson, Ph.D. (University of Minnesota), and Uma Thanarajasingam, M.D., Ph.D.

Exploring neonatal lupus with a research expert and personal experience: the basics behind this rare disease and even rarer instance of CHB

Lupus E-News Story
published January 6, 2016

Though uncommon, the newborn of a mother with lupus may have neonatal lupus. But the name “neonatal lupus” is a misnomer.

First, it’s important to note that neonatal lupus is a rare disease. Even though the word ‘lupus’ is in the name, this is misleading because it doesn’t mean the baby has lupus.

As Jill Buyon, M.D., a 2011 LFM-funded lupus clinical researcher at the New York University (NYU) School of Medicine, and leading expert in the area/field explains, “the name originated because the skin rash seen in babies with this disease resembled the cutaneous lesions seen in adults with systemic lupus erythematosus (SLE).”

Thank you, volunteers!

Lupus E-News Story
published November 3, 2015

We wish to express sincere gratitude to Sue Schott and Carolyn Hyland, two of the Lupus Foundation of Minnesota’s (LFM) educational support group facilitators who have recently retired from their leadership roles.

Thank you both for your commitment to LFM’s mission of supporting those living with lupus in our communities! You will be missed!

Highlighting community giving from across the state: Friends of LFM put the “fun” in fundraising

Lupus E-News Story
published November 3, 2015

This fall has been a busy one for Lupus Foundation of Minnesota (LFM) supporters, and we are honored to have been part of the fun! Here are a few highlights of what our friends have been up to on the field, on the dance floor, and out in the great outdoors to support our work to raise awareness and funds.

Ask a Doctor: What are the major differences between lupus as a youth and lupus as an adult?

Lupus E-News Story
published November 3, 2015

Systemic lupus can affect any part of the body. Rarely, the way in which it affects one individual would be identical to another. However, there are certain similarities in all people with lupus. Specific location in certain parts of the body, associated with particular laboratory testing, allows your doctor to group your whole body inflammatory problem into the category of lupus. Having a correct diagnosis of lupus allows your doctor to tailor your current treatment and to help you define your expectations for the future.

The diagnosis of lupus is the same in children as it is in adults. That being said, children and adults with lupus do have important differences.

Support comes in many forms and from all corners of the state

Lupus E-News Story
published September 10, 2015

The generosity and creativity of Lupus Foundation of Minnesota (LFM) supporters never ceases to surprise and wow! Here are a few highlights of what our friends did in their workplaces, clubs and even homes to support our work to raise awareness and funds.

Gain insight, hope, and confidence at free September workplace rights seminar

Lupus E-News Story
published September 10, 2015

Living with a chronic illness can be challenging, but especially when it comes to employment. Imagine if your employer thought you couldn’t work anymore, or you could no longer work but are denied benefits.

Meet Pat Shauer, an individual living with lupus, who navigated the employment system alone. Learn about the stresses she encountered when trying to access benefits and the resource that ultimately gave her the hope and confidence she needed “that assistance was only a phone call away.”

Ask a Doctor: What is the relationship between gut microbes and lupus?

Lupus E-News Story
published September 10, 2015

There is growing evidence that the bacteria within the gastrointestinal tract (the gut microbiome) can influence our health. Recent advances in technology have helped us realize that we are colonized with trillions of bacteria in the gut, on the skin, and oral mucosa. Studies in rats have suggested that changes within this internal environment can be associated with autoimmunity. This has particularly shown to be associated with certain types of autoimmune disease, such as experimental autoimmune encephalitis, which is similar to multiple sclerosis. It has also been shown to be a possible factor in inflammatory bowel diseases, such as Crohn’s and ulcerative colitis. The association with lupus and the gut microbiome is less clear but may also influence onset and severity or flares. Ongoing research to delineate this is currently underway.

Showcasing the six degrees of Diane: one volunteer demonstrates multiple ways to support the Lupus Walk for Hope and 5K Run

Lupus E-News Story
published September 10, 2015

Often linked to actor Kevin Bacon, the “six degrees of separation” is a social concept that links any two people on Earth via shared acquaintances. Well, former Lupus Ambassador Diane Zimmerman is connected to the Lupus Foundation of Minnesota (LFM) and the upcoming Lupus Walk for Hope and 5K Run like no other.

In fact, she has her own six degrees of connection, which also demonstrate the various ways YOU can get involved.

Numbers tell the story of LFM’s work

Lupus E-News Story
published July 29, 2015

Last year, the Lupus Foundation of Minnesota (LFM) focused its program efforts on improving the quality of life for people with lupus. We did so in three major categories:

  1. providing direct education and emotional support to individuals and their families and supporters
  2. raising public awareness about lupus
  3. funding lupus research efforts so we may one day learn the cause and cure for this disease.

Here’s a snapshot of how our efforts made an impact…

Putting ideas into action: LFM survey status update

Lupus E-News Story
published July 29, 2015

In July 2014, the Lupus Foundation of Minnesota (LFM) conducted a survey to obtain feedback for future planning of our education and supportive services. The results provided LFM an animated map to help inform the design and implementation of future programs.

As a result, LFM launched several new initiatives in the past year that reflect survey participants’ suggestions for more of the following…

Evaluating impact: collecting stories from Horizon Emergency Grant recipients

Lupus E-News Story
published July 29, 2015

Living with lupus is challenging, but it’s even more so when any number of life’s obstacles create an additional burden.

At the Lupus Foundation of Minnesota (LFM), we understand this reality; with every changing complication and symptom, people living with lupus experience a wide range of obstacles that can create financial emergencies.

For this reason, LFM established an emergency assistance program in the mid-90s called the Horizon Emergency Grant program for individuals diagnosed with lupus who are temporarily experiencing a financial crisis.

LFM Board of Directors welcomes new chair and new member

Lupus E-News Story
published July 29, 2015

In March 2015, Jason Price was elected Chair of the Board of Directors of the Lupus Foundation of Minnesota (LFM). Jason assumes the helm after previously serving two terms as Treasurer. He has been on the board since July 2012.

LFM is also pleased to announce that Karen Silgen was elected to LFM’s Board of Directors at the March 2015 meeting, and currently sits on the Research Committee.

Looking ahead to an LFM milestone

Lupus E-News Story
published July 29, 2015

Where were you in 1976? The Nation was celebrating its bicentennial, Jimmy Carter was elected as U.S. President, Rocky was in movie theaters, Viking I landed on Mars, a postage stamp cost 13 cents, and a handful of dedicated individuals saw a need to support those with lupus here in Minnesota.

That was nearly 40 years ago. And In 2016, we’ll celebrate this milestone of the Lupus Foundation of Minnesota’s existence.

Lupus to be featured in September issue of Minnesota Health Care News

Lupus E-News Story
published July 29, 2015

A primer on lupus is set to launch into the hands of over 40,000 people at 600 health care facilities (e.g., hospitals, clinics, pharmacies, etc.) throughout the Twin Cities metro.

Minnesota Health Care News has commissioned a feature on lupus in their upcoming September issue. The article, co-authored by Lupus Foundation of Minnesota (LFM) President Jennifer Monroe and 2015 LFM Clinical Research Grant Recipient Dr. Timothy Niewold of the Mayo Clinic, will provide an overview of the disease, highlighting basic definitions, treatment and management strategies, advances, and more.

Two Lupus Ambassadors representing LFM in 2015

Lupus E-News Story
published July 29, 2015

Over the past 11 years, Lupus Ambassadors have been chosen to serve in various capacities surrounding the Lupus Walk for Hope and 5K Run events. The role has since expanded to be a year-long commitment focused on driving awareness, sharing one’s own personal story, and presenting a “face” for lupus and the Lupus Foundation of Minnesota (LFM).

The role of Lupus Ambassador is an important one that not only provides a very public voice for the lupus community, but also provides an opportunity for the Ambassador, as he or she connects with others, shares personal experiences, and advocates for issues they feel are important to address around living with lupus.

In 2015, we’re honored to have two such people with lupus sharing their stories and perspectives, representing LFM.

In their own words, Larry Norgren and Ashley Albertson introduce themselves and describe why they have stepped up to tackle this position.

Who needs a world record when you’ve got a Sludgeathon?

Lupus E-News Story
published March 10, 2015

According to the Guinness Book of World Records, the longest consecutive time on the radio is 198 hours, held by a gentleman from the Netherlands.

Although impressive, we’re more impressed by Cory Cove’s annual 24 hours on the radio. His annual feat has raised over $154,000 for the Lupus Foundation of Minnesota (LFM) over the past seven years.

Cory, one-third of KFAN 100.3 FM’s Power Trip Morning Show, will once again take to the air on Friday, May 8 at noon and will not depart until the same time the next day. His on-air efforts are accompanied by an online silent auction, opportunities to donate, and visits from dozens of radio, sports and celebrity guests, all supporting lupus awareness and fundraising.

Living with lupus from adolescence to adulthood: turning childhood experiences into a career

Lupus E-News Story
published March 10, 2015

Being a youth can be challenging, let alone a youth living with lupus. Meet Dr. Kiana Johnson, a postdoctoral fellow at the University of Minnesota, who has been living with lupus since she was 12 years old.

Those years of experience have shaped Kiana’s career and inspired her to help others through different avenues, including the Lupus Foundation of Minnesota (LFM). On April 8, Kiana will co-facilitate the Living Well with Lupus as a Youth Seminar, where she will provide invaluable insights to youth and parents about living with lupus and how to successfully navigate the pediatric to adult health care system.

Announcing LFM scholarship opportunity for youth to attend summer camp

Lupus E-News Story
published January 7, 2015

Summer camp can be a rite of passage for many youth. For kids living with lupus, the experience is no different. Camps that uniquely accommodate the special needs of those with chronic illnesses are better able to provide opportunities for campers to meet other people with similar experiences, learn about living well with the disease, boost self-confidence, and have fun engaging in camp activities, such as campfires, s’mores, and sing-alongs.

The Lupus Foundation of Minnesota (LFM) is pleased to provide scholarships for youth living with lupus to attend such a summer camp at either Camp Sunshine or Camp Cambria.

Congratulations to 2015 lupus research grant recipients

Lupus E-News Story
published January 7, 2015

As we continue to work toward our vision of a world without lupus, we are proud to present our clinical research grant recipients for 2015. Totaling over $100,000, these grants have been awarded to Minnesota-based researchers Timothy Niewold, M.D. (Mayo Clinic); Emily Gillespie, Ph.D. (University of Minnesota); and Daniel Mueller, M.D. (University of Minnesota).

Survey results help LFM plan future programming

Lupus E-News Story
published January 7, 2015

In July 2014, the Lupus Foundation of Minnesota (LFM) conducted a survey to obtain feedback on how LFM may improve its education and supportive services. The participants’ responses punctuated what LFM does well, which areas to improve upon, ideas for future programming, and suggestions on how to raise awareness about lupus.

Respondents generated a myriad of ideas for future lupus-related educational topics ranging from pain management and progression of the disease to fatigue management and coping strategies.

Through this survey, LFM gathered critical information about its current education and supportive services. The input from participants provides an animated map for designing and implementing future LFM programming.

Saying goodbye to a superhero

Lupus E-News Story
published October 31, 2014

Some people think superheroes are just fiction, the result of creative minds and overactive imaginations. But those who knew and loved Dominic (Nick) Postiglione had irrevocable proof that superheroes were fact, and not fiction. To those believers, and that includes us here at the Lupus Foundation of Minnesota (LFM), Nick was Superman.

LFM seeks a slice of “nice” on Give to the Max Day – November 13

Lupus E-News Story
published October 31, 2014

“Minnesota Nice” doesn’t get any nicer than the state’s annual “Give to the Max Day.”

Happening on Thursday, November 13 this year, the Lupus Foundation of Minnesota (LFM) asks that you send some “nice” our way with a donation via GiveMN.org during this annual day of giving. Simply visit LFM’s page on the GiveMN site to make a contribution on Give to the Max Day itself.

Great weather made Leaf for Lupus ‘best year yet’

Hastings Star Gazette story by Katrina Styx
published October 29, 2014

For the sixth year in a row, Kristie Bauer and her mother and sister, with the help of Hidden Greens Golf Course, threw a big fall party for Hastings kids.

Hidden Greens gathered up the fallen leaves from the course and created massive 12-foot tall piles for the kids to jump in, and Bauer and her team set up other activities for kids and families to enjoy such as a hayride through the woods, face painting, cookie decorating, a staged photo booth and more.

Tell the world what “lupus is”

Lupus E-News Story
published August 28, 2014

Awareness – it’s one of the pillars of the Lupus Foundation of Minnesota’s mission. We attempt to raise awareness in everything that we do. But today we kick off a campaign that is strictly about raising awareness.

The campaign highlights what YOU, those touched by lupus, believe lupus is.

Encourage your friends to participate in a lupus research study

Lupus E-News Story
published August 28, 2014

If you have friends who are over the age of 18 and do not have lupus, they may be eligible to act as control subjects for a research study examining the gene expression patterns for patients with autoimmune and other disorders.

Support group training connects patients, supporters and experts

Lupus E-News Story
published August 28, 2014

Support groups are an essential means for promoting community and wellness among those living with lupus. Keeping these groups and their facilitators up-to-date on the latest in lupus research and pain management is critical to their ongoing success.

That’s why LFM hosted a special retreat for support group facilitators on August 9. Featuring a variety of presenters, it offered participants a chance to learn more about lupus, as well as meet one another and begin a dialogue on the best practices for support group facilitation.

Exercise program benefits those with joint pain and fatigue

Lupus E-News Story
published August 28, 2014

“The first time I tried exercising with weights and cardio segments I cried. The pain was unbearable and I couldn’t squat.”

These discouraging words were uttered by Regan Mizuno, referring to an attempt to exercise after she was initially diagnosed with lupus. She desperately wanted to exercise without the debilitating pain she was experiencing, so she began trying different ways to exercise that did not exacerbate the pain in her joints. Once Mizuno discovered what worked for her, she wanted to know why it worked.

Managing symptoms through healthy eating

Lupus E-News Story by Amanda Sue Watson
published August 28, 2014

Balanced nutrition is an excellent opportunity to manage symptoms and reduce potential issues related to lupus and other life stressors. While there is not a specific diet plan for lupus management, there are a number of things you can incorporate to feel empowered in your journey.

Summer + sunshine: living well with lupus

Lupus E-News Story
published July 30, 2014

It’s summertime – one of the most beautiful seasons of the year. Summer can be a time for livin’ easy, rejuvenation, and enjoying warmer weather and sunshine.

Yet, summertime is not so easy for people living with lupus.

State’s top poker players “all in” for the Lupus Foundation of Minnesota

Lupus E-News Story
published May 30, 2014

Two of Minnesota’s very best poker players, Blake Bohn and Matt Alexander, have made a very generous and very exciting pledge to the Lupus Foundation of Minnesota.

Curlers team up for good cause at Four Seasons Curling Club

ABC Newspapers Article by Jason Olson
published May 5, 2014

An inaugural celebrity curling tournament at Four Seasons Curling Club brought together one of the broadest and most well-known collections of curlers to take part in an event to benefit the Lupus Foundation of Minnesota at the Blaine ice sheet. The Lupus Spiel tournament ran Friday through Sunday, May 2-4.

Time to Roar: Stepping Out for Lupus Awareness Month

Lupus E-News Story by Jennifer Monroe, LFM President
published April 30, 2014

What does dedicating a month to awareness of lupus actually accomplish? It seems that there are so many months dedicated to so many health issues and diseases. There are those that garner a large amount of national attention and recognition, those which have high profile celebrity spokespeople, extensive media campaigns, and those that are very well known in the public consciousness.

And then there is lupus.

How I Got This Body: Chris Cronick

Star Tribune Article by Sheila Mulrooney Eldred
published March 31, 2014

2013 Lupus Ambassador and spinning instructor Chris Cronick is peddling past a mountain of health issues. You’d never guess that Chris Cronick has survived open-heart surgery, blood sepsis, pneumonia, six joint replacements, and that she continues to live with lupus, rheumatoid arthritis and celiac disease.

Jamming awareness, fundraising and fun into 24 hours on air

Lupus E-News Story by Cory Cove, KFAN 1003.FM
published March 31, 2014

We are entering our seventh year doing the 24-hour show benefitting the Lupus Foundation of Minnesota (LFM). It’s pretty hard to believe it’s already seven years. Seems like just a few months ago we were giving this thing our first attempt and in the process making tons of mistakes. But seven years later, we’ve built this thing from an $1800 science experiment gone wrong into an event that brought in over $50,000 last year …

A call for art: express yourself and raise lupus awareness

Lupus E-News Story
published March 31, 2014

Raising awareness about lupus is essential to improving the diagnosis and treatment of this chronic condition. The arts (including poetry, writing, photography, painting, music, sculptures) can be powerful ways to both express oneself and provide a creative lens for others to learn about lupus.

May is Lupus Awareness Month, an annual observance to raise awareness and educate others about this life changing disease. To engage people in learning about lupus, we invite you to submit an original piece of your artwork that tells a story about your experience living with lupus.

Involvement opportunities abound for the Lupus Food and Wine Classic

Lupus E-News Story
published March 31, 2014

It takes a village … we are continuously amazed by the “lupus village” and your generosity and support when it comes to supporting the mission of the Lupus Foundation of Minnesota whether it’s through our events or simply remembering us with a regular gift.

Our next major fundraising event, the fourth annual Lupus Food and Wine Classic, provides an opportunity for “the village” to gather, acknowledge May as Lupus Awareness Month and raise funds together to support our efforts to end lupus.

Already a handful of sponsors, donors, restaurants and wineries have committed their support. We’re anticipating another great event and there are multitudes of ways you can be involved both before or on the day of the event on May 7 at the Mall of America:

Bloomington support group leader reflects: living well with lupus

Lupus E-News Story
published February 28, 2014

Just over 25 years ago, my mother died from complications involving lupus. She was a wonderful mother and a dear friend. Prior to her death and continuing to this day, I made financial contributions to the Lupus Foundation of Minnesota (LFM) in her honor.

Studies explore higher cancer risk in children with lupus

Lupus E-News Story
published February 28, 2014

When people think of the fight against lupus, they usually think of the long and winding path full of different hurdles that a person living with the chronic disease must learn to overcome. But did you ever think that one of those hurdles could be cancer?

Curling and lupus: As the Winter Olympics approach, lupus patient Regan Mizuno shares her passion for curling for health and raising awareness and funds

Lupus E-News Story
published January 31, 2014

Lupus and curling: you wouldn’t necessarily think of them as a match, would you? However, I found that the sport has been one of the best things that has happened to me, and has changed my life for the better.

Introducing Sandy Parnell, LFM’s Director of Education

Lupus E-News Story
published January 31, 2014

We are pleased to announce that Sandy Parnell, MSW, has joined our Client Service staff at the Lupus Foundation of Minnesota (LFM) in the role of Director of Education.

Celebrating life in the face of a life-changing disease

Lupus E-News Story
published November 27, 2013

For the past 30 years, Rachel Neutzling of St. Cloud has been engaging in the fight against lupus. She sees every day as a blessing and truly lives life to the fullest, but for her, that 30-year mark was really something to celebrate. This is her remarkable story.

Healthcare law enrollment now extended to December 23 for coverage starting January 1

Lupus E-News Story
published November 27, 2013

Starting in January, most U.S. Citizens and legal residents are required to have health insurance. If you are already covered by private insurance, you likely can keep what you have, if it meets eligibility standards under the new health care law, or change to a plan of your choice that does. If you have been previously uninsured, or wish to switch or ‘shop’ for plans, you can access the availability and cost of various programs available under new insurance exchanges.

LFM participating in fifth annual Give to the Max Day on November 14

Lupus E-News Story
published October 31, 2013

The Lupus Foundation of Minnesota is one of the many nonprofit organizations throughout the state that will once again ask Minnesotans to display their record-breaking generosity by donating to their favorite causes online at GiveMN.org during the fifth annual “Give to the Max Day” on Thursday, November 14.

Huge thanks for Lupus Walk for Hope and 5K Run support

Lupus E-News Story
published September 30, 2013

A record-breaking 1,400 participants gathered in Plymouth and Rochester on September 14 and September 28 respectively to help raise funds and awareness for lupus at the annual Lupus Walk for Hope and 5K Run events. To-date the Twin Cities walk alone raised over $65,000.

Not just par for the course: personal connection tees up golf league fundraiser

Lupus E-News Story
published September 30, 2013

When Catherine (Katie) Tocko’s women’s golf league at Valleywood Golf Course in Apple Valley was looking for a new charity for their annual Women’s Thursday Night Golf League Fundraiser, Katie knew it would be for the cause that was nearest and dearest to her heart … the Lupus Foundation of Minnesota.

Co-chairs committed to Walk/5K in Duluth

Lupus E-News Story
published August 29, 2013

“It is important to us because it enables us to be proactive in fighting this insidious disease,” says Lois Backscheider of the event she and fellow lupus fighter Jody Anderson co-chair. “In this way, those of us with lupus are able to take control of, and fight back against, the disease we battle daily.”

Mom inspiration for intern’s work at LFM

Lupus E-News Story by Mercedes Pitzer, LFM Administrative Support
published July 31, 2013

Growing up, I always thought I would become a pharmacist just like my grandfather. However, after my first semester at North Dakota State University, I quickly realized that it was not for me. I changed my major to Health Communication and never looked back. Not only am I completely devoted to the career path that I am now embarking on, but I am just as passionate about it too.

Here comes the sun … but are you ready?

Lupus E-News Story
published May 31, 2013

It’s spring, almost summer, and everyone is clamoring for the warmth and cheeriness that comes with the sun as outdoor activities ramp up! However, it’s not all cheery when it comes to the effects of sun exposure, especially for those with lupus.

Autoimmune Disease Forum Scheduled for May 18 in Eagan

Eagan Patch Story
published May 11, 2013

The Lupus Foundation of Minnesota is a co-sponsor of “What Every American Needs to Know about Autoimmune Disease,” a forum hosted by the American Autoimmune Related Disease Association, happening Saturday, May 18, in Eagan. A handful of national and Minnesota medical professionals will speak on a variety of autoimmune topics. The event is free, but pre-registration is required. More information and registration is available here.

Take back control with LFM-hosted holistic health workshops

Lupus E-News Story
published April 30, 2013

Sometimes lupus can take over – physically, mentally and emotionally. Some overwhelming outside factors may include seeing specialists, prescription side effects, medical tests and procedures.  All of this can leave a person feeling like their life no longer belongs to them.

Edina Art Fair adopts LFM as charity partner

Lupus E-News Story
published April 30, 2013

The Lupus Foundation of Minnesota (LFM) has been selected as the charity partner of one of the largest art fairs in Minnesota: the Edina Art Fair. In its 47th year, the event takes place May 31-June 2 at the 50th and France quarter in Edina.

Sludgeathon: My favorite day of radio benefits LFM

Lupus E-News Story by Cory Cove, a.k.a. Sludge, KFAN
published March 29, 2013

I’ll be broadcasting my sixth annual 24-hour show benefitting the Lupus Foundation of Minnesota this April 20th through the 21st on FM 100.3 KFAN. I’ll be doing a show for 24 straight hours, aided along the way by tons of friends and coworkers such as Chris Hawkey, Paul Lambert (Meatsauce), Paul Allen, The Common Man Dan Cole …

LFM announces 2013 Student Summer Fellowships for research in Systemic Lupus Erythematosus

Lupus E-News Story
published March 29, 2013

The Board of Directors of the Lupus Foundation of Minnesota is pleased to announce this year’s selection of recipients to the 2013 Student Summer Research Fellowship Program. Funding awarded for summer fellowships 2013 totals approximately $20,000.

Individual consultations are a key focus of LFM’s Client Services

Lupus E-News Story
published March 29, 2013

Among the variety of group meetings, online and in-person support options and educational webinars offered by LFM, there is one service that concentrates on the needs of the individual and family in a private and comfortable setting … the individual consultation.

Working together to provide support in English and Spanish/Trabajando juntos para dar apoyo en inglés y en español

Lupus E-News Story
published February 28, 2013

On February 12 and 26, LFM Client Services provided Spanish presentations on living with lupus at Discapacitados Abriendose Caminos (D.A.C). D.A.C. is a nonprofit organization based in Minnesota that is solely dedicated to the challenge of disability as it affects Latino families, however anyone needing services are welcome …

Funding work towards a world without lupus

Lupus E-News Story
published January 31, 2013

The vision of the Lupus Foundation of Minnesota (LFM) is boldly and simply stated: A World without Lupus

Towards that end, LFM annually funds promising clinical researchers in their efforts to discover better ways to treat, cure, and help prevent lupus.  In December the foundation awarded $93,457 in grants to three Minnesota-based researchers in order to pursue these efforts.

LFM offers summer fellowship program for college students

Lupus E-News Story
published January 31, 2013

Since 1981, the Lupus Foundation of Minnesota has provided college-aged students with the unique opportunity to partner with accomplished researchers at local institutions working on lupus-related autoimmune research. To date, support from individual donors have provided over $330,000 to provide  110 fellows with the opportunity to work on vital research efforts aimed at improved detection, treatment and a cure.

Applications are being accepted now for this summer’s fellowships at the University of Minnesota and the Mayo Clinic.

Increasing lupus knowledge with the lupus conference

Lupus E-News Story
published January 31, 2013

The air buzzed with enthusiasm as approximately 100 attendees converged on December 15 for a fast-paced day of lupus education, including keynote speakers, breakout sessions and a research panel, all designed to further discussions between lives impacted both personally and professionally by lupus.

It was the Lupus Foundation of Minnesota’s Lupus: Advancements in Management, Treatment and Research conference …

You can make a difference, stride by stride, and side by side

Lupus E-News Story
published August 21, 2012

Join the Lupus Foundation of Minnesota for our annual Lupus Walk for Hope and 5K Run.

“Change can only occur with spirit, awareness and the motivation to make a difference.”  ou can make a difference too, as thousands join us for the Lupus Walk for Hope and 5K Run events …

“Just the thing” for budding researchers

Lupus E-News Story
published August 21, 2012

A career in clinical research is not for everyone, but for students like Pietro Miozzo and Brianna Lauer, it is just the thing. For Pietro, who is a sophomore at Yale University and is studying molecular, cellular and developmental biology in the pre-medicine program there, it’s exactly his thing. As an LFM Fellowship recipient, Pietro is currently …

Fatigue management program expanding statewide

Lupus E-News Story
published August 21, 2012

This fall, the Lupus Foundation of Minnesota will offer Get Up & Go: Boost Your Energy, a six-week fatigue management program, in three locations statewide. The success of last year’s pilot program is driving its expansion to other parts of the state.

Your gift makes a difference

Lupus E-News Story
published August 21, 2012

When you donate to the Lupus Foundation of Minnesota (LFM), you can be confident that you’re helping us in critical ways to meet our overall mission. But you might ask how does that gift translate into helping individuals? Or what difference does my donation make to help those in need right now, today? Learn more through three personal stories ….

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