Have you ever looked back to see how hard something seemed at the time? Ever wondered why you were so afraid?
When I was hospitalized in 2010 for lupus nephritis, I was really afraid that night. My lupus had been quiet for over 15 years, but now I worried I wasn’t going to make it through the night. I was so thankful that I had someone to advocate for me during those days; I know I didn’t have the courage.
But courage came quickly. After several more doctors’ visits after I was discharged, it quickly became clear that there were gaps in the system with the transition of information. It was not flowing smoothly from one physician or care system to another. I realized I had to take an active role in the management of my health care to ensure these gaps were filled. I had to be my own health care advocate if I wanted to manage my lupus ...Continue Reading →