Archive for 'Ambassadors'

Flares and bad days

When you have lupus, you have periods of disease remission and flares. Remission may seem like the disease is gone, but the reality is it never goes away; it’s just quiet. A lupus flare is a period of heightened disease activity which for me, ranges from mild to moderate and to severe. I’ve had both remission and flares all in the same day. Lupus turns on me that fast. After being diagnosed, I’ve become very aware of how I am ...

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chriscronick
chriscronick
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Introducing My Lupus Research Project

My name is Ami Yamamoto, and I have the great opportunity of being one of the Lupus Foundation of Minnesota’s  Student Summer Fellows for 2013. This summer, I am studying under Erik Peterson, M.D., in the Department of Rheumatic and Autoimmune Diseases at the University of Minnesota–Twin Cities.

As I will write about in more detail in a later post, my project is to contribute to research on the gene PTPN22 which Dr. Peterson and his team thinks ...

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ayamamoto
ayamamoto
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My “New Normal”

As I’m thinking of ideas to blog about, it occurred to me to talk about some of the topics I find myself discussing with friends and family. Most people have heard of lupus but many don’t really know how life-altering it is. I sure didn’t.
 
When I was diagnosed nearly three years ago, I knew very little about lupus. I knew it’s an autoimmune disease meaning that my body is basically attacking itself. I knew of people who got ...

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chriscronick
chriscronick
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Introducing 2013 Lupus Ambassador Chris Cronick

My name is Chris Cronick and I’m honored to have been chosen as the 2013 Lupus Ambassador for the Lupus Foundation of Minnesota (LFM). I’m 37 and I was diagnosed with lupus in 2010. Prior to my diagnosis, I was in and out of the hospital for six months. It was a very scary time, not knowing what was wrong. I was tested for everything, but eventually was diagnosed with lupus SLE.

I have found that many times those ...

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chriscronick
chriscronick
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A hesitant beginning to a happy commitment

2012 began for me with the Lupus Foundation of Minnesota asking me to be an ambassador for their organization. I was initially hesitant for a couple reasons. One was the lengthy flare I had been dealing with from the recent, and very sad, death of my father – I wasn’t sure if I would be able to follow through. The second reason was my ongoing, on-and-off lupus diagnosis – I wasn’t convinced that I would be a very good ...

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kzink
1

Inflammation

It is with the heaviest of hearts that I recently learned of the loss of a young, athletic lady, taken by complications of her disease activity. I really don’t believe there is anything that grabs the attention more of those afflicted with lupus, than the unexpected death of a fellow lupus fighter. My deepest sympathy and heartfelt wishes to the McHale family as they mourn the loss of their 23 year-old daughter, Sasha.

Straight-up, lupus is cruel. It doesn’t distinguish between ...

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kzink
0

Choosing How I Want to Use My Energy

Today I was fortunate enough to come home from work early and take a nap. I work full time and even though my job is protected through FMLA, I can only use so much of that during a month. Some days I don’t feel bad enough to stay home, but I don’t feel good enough to work all day either. Plus I know that pushing myself can sometimes be detrimental and cause a flare.

For me, having lupus is an everyday ...

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galexander
0

The Perfect Gift

Eleanor Roosevelt said it best, “Yesterday is history, tomorrow a mystery, today is the gift, that’s why it’s called the present.”

When living with a life-threatening, chronic illness it is very (repeat VERY) easy to get ahead of yourself, to worry about the unknowns and to fear the future. Perhaps mingling in the knowledge of what lupus can do and has already done in your life, may have accelerated those thoughts for you. For me it has. I feel like ...

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kzink
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Introducing Kim, Lupus Ambassador

Hello everyone! I’m Kim, one of the 2012 Lupus Ambassadors for LFM. We may have even met at the Twin Cities, Rochester and Duluth Lupus Walks for Hope, or at the Lupus Night at Target Field this past year.

For those of us living with lupus, 2012 has been an exciting year filled with hope, amazing awareness efforts, breakthroughs in research and increased public donations to find a cure. I’ve seen this on a national level, but quite extensively here in ...

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kzink
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Introducting Gwen, Lupus Ambassador

My name is Gwen Alexander and I’ve been diagnosed with lupus since 2006. I’m pretty confident I’ve been living with it most of my life but just not knowing. I’m a divorced mother of a 16-year-old dancer, wannabe actress/model/chef/beautician. I’ve been dating the same man for about 10 years and for now I’m working full time and I am currently the Ambassador for the Lupus Foundation of Minnesota (LFM). I’ve spent most of this year raising awareness and monies for ...

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galexander
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