Marking a milestone: looking back on my lupus diagnosis

If you have ever been sick, please read. If you haven’t, count your blessings and please keep reading.

The day is March 10 and this day six years ago marks the first day down a hellish six-month path to lupus. I had nighttime fevers for two nights until I walked into urgent care. This was the beginning of a whirlwind crisis; I was advised to rush to the ER.

It was thought I had an infection of some sort, but nothing was showing ...

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The top five ways you can help as a caregiver

My husband and primary caregiver, Patrick, wants to get in on the blogging, so I’m turning this post over to him. Here it goes:

Hi all!

My name is Patrick Spott and I thank you for this opportunity to “speak” on the topic of “caregiving.” Some of you may know that my wife Chris was the 2013 Lupus Foundation of Minnesota (LFM) Ambassador. Our 14 years of marriage have been burdened not only with lupus, but rheumatoid arthritis, celiac disease and a ...

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Uniting for a common purpose

We recently finished the Lupus Walk for Hope and 5K in Plymouth on September 14, Rochester on September 28, and the last event in Duluth on October 5. Time has flown by, as it seems like it was just last week we were in Duluth. I’m grateful to have participated in all three Walk/5Ks and even more grateful my body decided to cooperate with me through the weather, travel, and excitement of it all.

As Ambassador, I’ve had the pleasure of ...

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Support comes in all forms

Lupus is a chronic disease which means it’s something that is life-long with no cure. I am doing well today, but that does not mean that’s true tomorrow. I knew I would be dealing with lupus for the rest of my life. Given that, I quickly realized I would have to rely on, and ask for support, from those around me. For someone who is fiercely independent and rather “Type A,” this is very humbling. Asking for help used to ...

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The good days

Have you ever heard the phrase “It’s a good day.” said by someone who has health issues? Many people with chronic illness know what good days and bad days are. For me, a good day with lupus means I can move relatively free without pain, I think clearly, and I can do many of the (sometimes simplest) things on my to-do list.

Sounds easy enough, right? Well, if you’ve read my previous blog post, “Flares and bad days,” you can ...

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Flares and bad days

When you have lupus, you have periods of disease remission and flares. Remission may seem like the disease is gone, but the reality is it never goes away; it’s just quiet. A lupus flare is a period of heightened disease activity which for me, ranges from mild to moderate and to severe. I’ve had both remission and flares all in the same day. Lupus turns on me that fast. After being diagnosed, I’ve become very aware of how I am ...

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My “New Normal”

As I’m thinking of ideas to blog about, it occurred to me to talk about some of the topics I find myself discussing with friends and family. Most people have heard of lupus but many don’t really know how life-altering it is. I sure didn’t.
 
When I was diagnosed nearly three years ago, I knew very little about lupus. I knew it’s an autoimmune disease meaning that my body is basically attacking itself. I knew of people who got ...

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Introducing 2013 Lupus Ambassador Chris Cronick

My name is Chris Cronick and I’m honored to have been chosen as the 2013 Lupus Ambassador for the Lupus Foundation of Minnesota (LFM). I’m 37 and I was diagnosed with lupus in 2010. Prior to my diagnosis, I was in and out of the hospital for six months. It was a very scary time, not knowing what was wrong. I was tested for everything, but eventually was diagnosed with lupus SLE.

I have found that many times those ...

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