You worry about your children from the minute they are born. But when you know they could also have lupus, you worry even more. Then you add grandchildren to the mix and the worry becomes enormous.
All the worrying in the world won’t change anything. So, we have tried, as a family, to be as educated as we can be about lupus. Watch for the tell-tale signs and behaviors of lupus, with the hopes of cutting it off at the pass, so to speak. Recognizing the signs enables us to seek help professionally when the need arises.
My family can read my face and body language and tell how I’m feeling, sometimes knowing before I do, that I have passed my limits.
Education and awareness of your disease is one of your greatest tools. There are numerous sources of education and information. Seek out information and educate yourself as much as you can. The Lupus Foundation of Minnesota, lupus support groups and your local library are good places to start in becoming educated and informed.